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Life As We Know It A Father, a Family, and an Exceptional Child (Paperback)

Author:  Michael Berube
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Learn more about Life As We Know It:

Format: Paperback
ISBN-10: 0679758666
ISBN-13: 9780679758662
Sku: 30317218
Publish Date: 4/10/2007
Dimensions:  (in Inches) 8H x 5.25L x 0.75T
Pages:  304
 
When Jamie Berube was born with Down syndrome in 1991, he was immediately subject to the
medical procedures, insurance guidelines, policies, and representations that surround every child our society
designates as disabled. In this wrenching yet ultimately inspiring book, Jamie's father, literary scholar Michael
Berube, describes not only the challenges of raising his son but the challenge of seeing him as a person
rather than as a medical, genetic, or social problem.
From the Publisher:
When Jamie B?rub? was born with Down syndrome in 1991, he was immediately subject to themedical procedures, insurance guidelines, policies, and representations that surround every child our societydesignates as disabled. In this wrenching yet ultimately inspiring book, Jamie's father, literary scholar MichaelB?rub?, describes not only the challenges of raising his son but the challenge of seeing him as a personrather than as a medical, genetic, or social problem.When Jamie Berube was born with Down's Syndrome in 1991, he was immediately subject to everything that surrounds every child our society designates as disabled. Here, Jamie's father describes the challenges and joys of raising his son. As he follows Jamie through his first four years of life, Berube evokes the sorrow and exhilaration of watching this loving child struggle for a place in the larger world.The author explores contemporary ideas about family values, social justice, and the sanctity of life through his experiences raising a child with Down's syndrome and his struggle to keep his son's personhood in view. Reprint. 25,000 first printing.When Jamie Bérubé was born with Down syndrome in 1991, he was immediately subject to the
medical procedures, insurance guidelines, policies, and representations that surround every child our society
designates as disabled.  In this wrenching yet ultimately inspiring book, Jamie's father, literary scholar Michael
Bérubé, describes not only the challenges of raising his son but the challenge of seeing him as a person
rather than as a medical, genetic, or social problem.
Annotation:
A father writes of his son, afflicted with Down syndrome, who must grow up in a society that does not value him.

Praise

Kirkus Reviews
"An engaging personal account of raising a son with Down's syndrome, by a loving father for whom the experience raises serious questions about the nature of social justice, natural rights, and our obligations to one another." 08/01/1996

New York Times Book Review
"[A]n astonishingly good book, important, literate, and ferociously articulated....If we dare to see this one child, Jamie, AS Jamie, we extend our imagination beyond old notions of the shelf, into who knows what new kinds of thinking about difference and otherness and the value we place on human life." - Beverly Lowry 10/27/1996

Los Angeles Times Book Review
"This important book deals with a wider subject than its title suggests....[It] does indeed describe Jamie's tortuous mental and physical progress and his parents' efforts to provide him with love, medical care and an appropriate education. But...Berube wants to 'represent' his son's claims against those who...would deny Jamie a chance to learn enough to represent himself." - Michael Harris 10/27/1996

Bloomsbury Review
"Part of the greatness of Berub?'s story is how much he and his wife are resolved to make Jamie a person and...and the narrative becomes an extraordinary one of inclusion..." - Reamy Jansen Sept./Oct. 1997

Product Attributes

Product attributeBook Format:   Paperback
Product attributeNumber of Pages:   0304
Product attributePublisher:   Vintage Books
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